I am usually really good about updating the blog, but this last chemo sent me into a tizzy! I had my second chemo on the 6th, and was tired the rest of the week, the usual. Also took my Neulasta on Tuesday to boost the white blood cells. But on Friday 8/10 I woke up with horrible red dots all over my head, ok zits and white pustules, for you visual folk!! I was working that day, so I wore the wig, and by the afternoon my head was on fire, more inflamed, more zits. I was aching all over, and had to leave work early (ok, so my friends at work escorted me from the building!) I called Oncology, and she called me in some antibiotics....but from there I just got feeling sicker. I slept all weekend, cried alot b/c of the pain in the scalp, nothing tasted good, my temp was up and down, resorted to taking narcotics for the pain (ok, I do like them, but had to make it sound better!) Was online with Oncologist all w/e, sent photos of my pretty head, she wants to share them with her colleagues since she has not seen a case of folliculitis this bad in a long time. She thinks is could be the Neulasta, we are skippping it on the next chemo!! So today I went into The BI with Mom, and Corie looked over my head and we added a few more drugs to my ever-growing Rubbermaid carry case of pills (of course I have the Sun-Sat individual pill box, this is just the box to CARRY the bottles!) I am staying on the Kefzol antibiotic for a few more days, I have new and improved Narcotics, a topical antibiotic, a topical steroid, and not to mention a cooling and soothing masque! It has to get better from here! I will see my Onc again on Thursday a.m.!
After my MD appt, mom and I went shopping at the cancer store on the cancer floor (who knew thay had one!! I wonder what store they have on the behavioral dysfunctional/mental unit!? ).....mom got me 2 cool hats, 2 cool scarves (they make them bigger at the cancer store so you can wrap better!!) and a cool bag. Thanks Mom! I will bring them to NH this weekened~~~ Dave is racing UP Mt.Washington, and then Story Land and Santa's Village, hopefully a mellow and head pustule-free weekend! Chat soon!!!!
Subscribe to:
Post Comments (Atom)
12 comments:
Maybe we should visit the store at the behavioral dysfunctional/mental unit, who knows, maybe there's something good there!
I am so sad you had such a tough week, how dare those pustules invade your beautiful head and cause you pain and make you cry...you are a hero, and braver and more courageous than anyone I know. I agree with Lisa, a visit to the behavioral dysfunctional/mental unit store may have something interesting, maybe some "let out hostility toys",? hmmm, I am due for a shopping spree..hugs, mary ann :)
Sorry to hear that you are having such a rough patch. Hopefully the new meds will kick in soon and things will get better. Go ahead and cry....you ARE allowed!
Tell Dave I wish him good luck on his bike ride. Cheer him on for me, too!
Love you, Cindy
In 21 years of oncology nursing, I think I have only seen one case of folliculitis of the scalp! Why you?? I do want to see the pictures...and I would love to come to the gift shop for the behavioral/dysfunctional mental people! I am sure there is something I need!
XOXO
Robin
Was going to put photos on the blog of my head, but it was pretty gross, not pretty! Did not want to be shut down d/t graphic photos! Kristin
Hi Kristen
I have been thinking about you everyday. Today is the first day I have accessed your blog...you have had such a rough week.
I trust the new drugs will give you some comfort and the weekend will supply some distraction!
Love You...Miss You
Fiona
Excuse me, I'm the manager of the behavioral dysfunctional mental unit and we do have specials. Kristin, take it easy this weekend and recover! Mt.Washington can wait. Love you, m
I'm going to learn this contraption and try to send a message - even tho I've spent two days this week with you in traffic!
In the Oncology unit - at lunch, etc...Honey - your head looks so much better! Thanks Dave - for giving her a nice buzz cut! Have a nice weekend up Mt. Wash...I'll watch the house, pets, etc. HAPPY BIRTHDAY! LOVE U..Mom
See Mom, I told you you could do the computer!!! I am very proud of you! Thanks for coming with me this week...my head is feeling better!! Kristin
Hi Kristin
Hope you have a fun Birthday weekend in NH ~ thinking about you!
Remember I will take you for the next chemo treatment..:)
Love you,
betsy
Happy Birthday! I cannot wait to see your new diamond earrings!
XOXO
Robin
HAPPY BIRTHDAY!!!!!
Next manicure/pedicure is on me, so book one, ok! It's only 8:45 and the pounding upstairs in the bathroom is VERY loud! Wish I was heading to NH!
Post a Comment